Healthcare Research in Canada

Canadian Health Research

Patients and caregivers are actively partnering in health research globally – and Canada is no exception.

Patients and caregivers are actively partnering in health research globally – and Canada is no exception.

As partners, patients and caregivers are helping to set research priorities to evaluate research and to partner on research teams. Researchers are starting to value the perspective of patients and caregivers as an essential piece of the research puzzle.

Canadian Health Research
SPOR / SRAP

Federally, the Canadian Institutes of Health Research (CIHR) launched its Strategy for Patient-Oriented Research (SPOR) initiative in 2011. More about SPOR

SPOR Networks

Currently there are several pan-Canadian SPOR Networks focused on a condition and/or population. Learn more about each network here.

SPOR SUPPORT Units

There are SPOR SUPPORT Units in most provinces/territories that work within their jurisdictions to promote the inclusion of patients and caregivers as partners in research. Many of these Units support groups of patients and caregivers active as partners on research teams with training and networking. Complete List of SPOR Support Units

PaCER                                                                                                       Patient and Community Engagement Research

The Patient and Community Engagement Research or PaCER program is offered through the University of Calgary’s Continuing Education, the Certificate in Patient and Community Engagement Research is a non-credit three-course program that teaches 160 hours of patient-engagement research content over 12 months.

Other National Organizations

The Canadian Institute for Health Information (CIHI) is an independent, not-for-profit organization that provides essential information on Canada’s health systems and the health of Canadians.

Healthcare Excellence Canada (HEC) is a pan-Canadian organization that focuses on improving healthcare with – and for – everyone within the country. Launched in spring 2021, Healthcare Excellence Canada brings together the Canadian Patient Safety Institute and Canadian Foundation for Healthcare Improvement. 

International Organizations

In the English-speaking world, there are some key international organizations that promote patient and caregiver involvement in health research.

PAN Members Community Guidelines


We want everyone to feel welcome on our PAN community site, so we’ve created these guidelines to foster the community we would like to see. By joining and participating in our Community, you agree that you have read and will follow these guidelines.

Within the PAN Community site and in our dealings with each other through other PAN initiatives:

  1. Be respectful. We all have a shared goal of making healthcare better for Canadians. The PAN Community may include people you work with or may meet in future. As members of PAN, we demonstrate respect in our communication, sharing and crediting of resources/knowledge and  in our interactions with each other and stakeholders from outside the PAN.

 

  1. Focus on a positive and collaborative approach.  Let’s work together to build strong relationships so we can achieve great things. Diversity of thought and sharing of perspectives is healthy – we won’t all agree on everything, but we want to keep an open mind to consider new ideas and change.

 

  1. Do not discriminate or engage in harmful activity. We value different ideas and opinions but there is no place for any activity that could hurt someone, whether it’s physical, emotional, mental or digital. Racism, hateful language, or discrimination of any kind is not acceptable. Don’t post anything you wouldn’t want everyone in the world to know about or that you wouldn’t want anyone to know that it came from you.

 

  1. Use your true identity. We made this community site private so that we can feel free to be ourselves. Each member is vetted by our team to ensure people are here for the right reasons. Communicating with each other is based on trust.

To ensure the PAN community remains a safe place for all members, we ask you that you contact hello@patientadvisors.ca if you encounter a situation where guidelines may have been breached. PAN reserves the right to suspend or terminate membership in the Community for anyone who violates these guidelines.

 

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Directives de la communauté des membres du PAN


Nous voulons que tout le monde se sente bienvenu sur notre site Web communautaire de PAN. Nous avons donc créé ces directives pour aider au développement de la communauté que nous aimerions voir. En rejoignant et en participant à notre communauté, vous acceptez de lire et de suivre ces directives.

Sur le site de Web de la communauté de PAN et dans nos relations mutuelles dans le cadre d'autres initiatives de PAN :

  1. Soyez respectueux. Nous partageons tous l'objectif d'améliorer les soins de santé pour les Canadiens. La communautéde PAN peut inclure des personnes avec lesquelles vous travaillez ou que vous pourriez rencontrer à l'avenir. En tant que membres de PAN, nous faisons preuve de respect dans notre communication, le partage et l'attribution de ressources/connaissances et dans nos interactions les uns avec les autres et avec les parties prenantes extérieures de
  2. Se concentrersur une approche positive et collaborative.  Travaillons ensemble pour construire des relations solides afin de réaliser de grandes choses. La diversité de pensée et le partage des perspectives sont sains - nous ne serons pas tous d'accord sur tout, mais nous voulons garder l'esprit ouvert pour envisager de nouvelles idées et des changements.
  3. Ne faites pas de discrimination et neparticipez pas à des activités nuisibles. Nous apprécions les idées et les opinions différentes, mais il n'y a pas de place pour les commentaires susceptibles de blesser quelqu'un, que ce soit physiquement, émotionnellement, mentalement ou numériquement. Le racisme, les propos haineux ou la discrimination sous quelque forme que ce soit ne sont pas acceptables. Ne publiez rien que vous ne voudriez pas que tout le monde sache ou dont vous ne voudriez pas que l'on sache qu'il vient de vous.
  4. Utilisez votre véritable identité. Nous avons rendu ce site Web communautaire privé afin que nous puissions nous sentir libres d'être nous-mêmes. Chaque membre est accepté manuellementpar notre équipe pour s'assurer qu'il est là pour les bonnes raisons. La communication entre nous est basée sur la confiance.

Pour s'assurer que la communauté de PAN reste un endroit sûr pour tous les membres, nous vous demandons de contacter hello@patientadvisors.ca  si vous rencontrez une situation où les directives ont été violées. PAN se réserve le droit de suspendre ou de résilier l'adhésion à la communauté de toute personne qui enfreint ces directives.

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